Correlation between the Acceptance of Illness and Quality of Life in Patients with Inflammatory Bowel Disease
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摘要:
目的 调查炎症性肠病患者(inflammatory bowel disease,IBD)疾病接受度及生存质量现状,并探讨两者间的相关性。 方法 通过便利抽样法选取在云南省炎症性肠病中心就诊的345名IBD患者作为研究对象。采用一般资料调查表、中文版疾病接受度量表(AIS)、炎症性肠病生存质量量表(IBDQ)收集数据。 结果 IBD患者的疾病接受度总分和生存质量总分分别为(21.95±5.58)分和(166.41±30.75)分,2者呈正相关关系(r = 0.606,P < 0.01)。 结论 IBD患者疾病接受度越高,其生存质量也越高,护理工作者应引导IBD患者正确认识疾病,鼓励其适应并接受自身疾病,进而改善生存质量。 Abstract:Objective To investigate the status of disease acceptance and the quality of life in patients with the inflammatory bowel disease (IBD), and to explore the relationship between them. Methods A total of 345 patients with IBD attending the Inflammatory Bowel Disease Center in Yunnan Province were selected as the study population by convenience sampling method. Data were collected using the General Information Questionnaire, the Chinese version of the Acceptance of Illness Scale (AIS), and the Inflammatory Bowel Disease Quality of Life Scale (IBDQ). Results The total scores of the disease acceptance and the quality of life of IBD patients were (21.95±5.58) and (166.41±30.75), respectively, which were positively correlated (r = 0.606, P<0.01). Conclusion The higher the acceptance of IBD patients, the higher the quality of life. Therefore, nursing workers should guide IBD patients to correctly understand the disease, encourage them to accept the disease, so as to improve their quality of life. -
Key words:
- Inflammatory bowel disease /
- Quality of life /
- Acceptance of illness /
- Correlation
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表 1 不同特征IBD患者分布及AIS和IBDQ得分比较(n = 338)
Table 1. Distribution of IBD patients with different characteristics and comparison of AIS and IBDQ scores (n = 338)
项目 频数[n(%)] AIS IBDQ $ \bar x \pm s $ F/t P $ \bar x \pm s $ F/t P 性别 1.038 0.309 0.259 0.611 男 190(56.2) 21.67 ± 5.755 167.16 ± 31.78 女 148(43.8) 22.30 ± 5.37 165.45 ± 29.46 年龄(岁) 1.333 0.265 0.665 0.515 18~35 121(35.8) 22.05 ± 5.55 165.84 ± 28.04 35~55 175(51.8) 22.19 ± 5.42 167.88 ± 31.09 ≥55 42(12.4) 20.64 ± 6.25 161.93 ± 36.59 文化程度 5.072 0.007* 4.180 0.016* 初中及以下 134(39.6) 20.97 ± 5.52 161.52 ± 33.44 高中/大专 109(32.2) 21.94 ± 5.91 165.20 ± 30.92 本科及以上 95(28.1) 23.33 ± 5.03 173.34 ± 25.83 职业类型 1.108 0.346 2.703 0.046* 在职人员 129(38.2) 22.61 ± 5.40 172.38 ± 24.80 农民 94(27.8) 21.59 ± 6.23 162.24 ± 35.84 离退休 37(10.9) 21.05 ± 4.60 161.89 ± 31.00 无业/其他 78(23.1) 21.71 ± 5.46 163.71 ± 31.90 居住地 4.842 0.028* 2.943 0.087 农村 146(43.2) 21.18 ± 5.69 163.13 ± 31.63 城市 192(56.8) 22.53 ± 5.45 168.91 ± 29.91 自评经济压力 7.612 0.001* 5.332 0.005* 完全没压力 26(7.7) 24.92 ± 3.24 182.00 ± 23.59 有些压力 183(54.1) 22.38 ± 5.53 167.71 ± 27.67 很有压力 129(38.2) 20.73 ± 5.75 161.43 ± 34.87 疾病类型 1.390 0.137 2.462 0.122 UC 235(69.5) 21.53 ± 5.70 165.05 ± 30.75 CD 103(30.5) 22.90 ± 5.20 168.09 ± 29.49 疾病状态 8.905 <0.001* 9.593 < 0.001* 缓解期 121(35.8) 23.56 ± 4.88 181.81 ± 25.77 轻度活动期 93(27.5) 23.10 ± 5.02 173.69 ± 23.45 中度活动期 82(24.3) 20.71 ± 5.73 153.13 ± 26.91 重度活动期 42(12.4) 17.17 ± 5.29 131.86 ± 27.75 *P < 0.05。 表 2 IBD患者疾病接受度得分情况(n = 338)
Table 2. Scores of disease acceptance in IBD patients (n = 338)
项目 $ \bar x \pm s $ 1 我很难适应疾病带来的限制。 2.48 ± 0.94 2 因为健康问题,我不能去做自己最喜欢的事情。 2.41 ± 1.00 3 疾病有时候让我感到自己很无用。 2.75 ± 1.00 4 疾病使我比想象中更依赖他人。 2.83 ± 0.96 5 疾病使我成了家人和朋友的负担。 2.66 ± 1.01 6 我的健康状况让我感到自己信心不足。 2.66 ± 1.00 7 我将不可能因足够自给而让自己开心了。 2.94 ± 0.94 8 因为我的疾病,我想我周围的人会经常感到不舒服。 3.21 ± 0.95 AIS 总分 21.95 ± 5.58 表 3 IBD患者生存质量得分情况(n = 338)
Table 3. Scores of quality of life in IBD patients (n = 338)
项目 得分范围 $\bar x \pm s $ 下降率(%) 肠道症状 10~70 54.39 ± 10.26 22.30 全身症状 5~35 23.86 ± 5.76 31.83 情感功能 12~84 61.86 ± 11.01 26.36 社会功能 5~35 26.30 ± 6.70 24.86 IBDQ总分 32~225 166.41 ± 30.75 26.04 表 4 IBD患者疾病接受度与生存质量相关情况(n = 338,相关系数r)
Table 4. Correlation between disease acceptance and quality of life in IBD patients (n = 338,r)
项目 IBDQ总分 肠道症状 全身症状 情感功能 社会功能 AIS总分 0.606** 0.486** 0.483** 0.556** 0.526** 1、我很难适应疾病带来的限制 0.242** 0.204** 0.197** 0.204** 0.179** 2、因为健康问题,我不能去做自己最喜欢的事 0.316** 0.241** 0.250** 0.250** 0.260** 3、疾病有时候让我感到自己很无用 0.459** 0.353** 0.366** 0.450** 0.418** 4、疾病使我比想象中更依赖他人 0.447** 0.323** 0.309** 0.398** 0.413** 5、疾病使我成了家人和朋友的负担 0.446** 0.358** 0.364** 0.410** 0.418** 6、我的健康状况让我感到自己信心不足 0.557** 0.428** 0.440** 0.518** 0.482** 7、我将不可能因足够自给而让自己开心了 0.495** 0.424** 0.422** 0.476** 0.404** 8、因为我的疾病,我想我周围的人会经常感到不舒服 0.471** 0.414** 0.417** 0.444** 0.429** **P < 0.01。 -
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